MR FRANCOIS HOUYEZ

Health Policy Officer, EURODIS

As Health Policy Officer at the European Organisation for Rare Diseases, François Houÿez is in charge of issues related to access to care, access to orphan drugs, and comparison of best practices for a policy on rare diseases. He is the project manager for the organisation of the European Conference on Rare Diseases. He is part of the working group with patients' organisations at the European Medicines Agency (EMEA). As a patient, he is a member of the French haemophiliac association and of the HNPP-Tomaculous neuropathy association. He has worked both as volunteer and as employee for a variety of organisations fighting AIDS at national and international levels since 1989. A special emphasis of his work has been patients' rights advocacy. His background includes medical studies and training in medical computer science and epidemiology.

Presentation: Addressing inequalities of access to healthcare in an expanded Europe

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